Catching Up on this Wild Ride

Greetings all:

Well, it is painfully obvious that we failed this blog mission. Calvin is now three months old, and the last post was two months before his birthday….whoops?

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Calvin; Three Months and One Day New!

Calvin is getting stronger, smarter, more inquisitive, talkative, and happier every day. He is an amazing gift! I love this little dude from the the bottom of my heart. It is a really cool experience to become a father. The transformation from husband to husband and father is a really neat thing, indeed.

Anyways, I want to update you all on Calvin’s hospital life….or as I like to call it, his long stay at Hotel de Vandy.

Calvin was born on January 26, 2015 at 5:37pm (or 5:34pm, we are still trying to figure out which minute it really was). He was a 8lb-9oz bouncing, screaming, baby boy.

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Calvin in “the box” before his first surgery, the Norwood Procedure.

When they put the pulse-ox on him, his oxygen levels were in the mid-90s. That worried the doctors a bit, since he was supposed to be the 70-80s for his heart condition. To help bring his oxygen levels down, they put him in “the box.” Long story short, his high oxygen levels meant that too much blood was going to his lungs, and not enough to his body…his flow was dangerously messed up.

On February 2nd, Calvin went through the worst day of my life, his Norwood surgery.  It was a successful surgery, and he was only in the PCICU for 4.5 days. His recovery was quick. The rest of our time was on “the cardiac floor” where children get off oxygen, learn to eat, and get ready to go home. Our stay was another five weeks; some babies can stay here for up to a year.

That was a brief overview. We went home four times, going back tot he hospital for weekends or weeks in between.

Yesterday, Friday May 1st, Calvin had been in the hospital for a week, and went through his first heart cath, a procedure where they go into his heart through a cath, and take continuous xrays to better understand the construction of the heart. They can also test the pressures of various areas of his heart and lungs. Calvin was cleared for his next surgery, the Glen, but it was recommended to wait another 4-6 weeks if possible, just so his veins and arteries can grow a little more.

During his cath, they found a “little surprise.” Apparently, Calvin’s heart has a narrowed or mostly occluded coronary sinus. An issue that will need to be corrected during his Glenn, and unfortunately requiring him to go on the by-pass machine. We were stunned, shocked, saddened, but ultimately, it was always there, we just didn’t know it.

As one of his doctors keeps reminding us. Every heart baby is different, not one of them has the same defects in the same order of magnitude or same accompanying complications. If we don’t look alike on the outside, how can we expect that all of our hearts are the same. The fact is, each baby’s heart is different, and the doctors must piece together each baby’s heart story to figure out the best way to treat and heal.

There you go! You have all been roughly caught up. There are more details on our Facebook walls, so if you want to stalk Erica or I, go for it. All in all, from his 20+ echos, 15+ xrays, one open heart surgery, and now his first heart cath, Calvin has racked up a long list of complicated and rare heart defects. As much as my heart aches that he will have to live life with these, I hope he sees God’s grace in it all some how. I hope he wears them with a sense of pride and hope. That God has for some reason saw him fit to bear these burdens for His Glory.

As of May 1, 2015, Calvin is known to have Tricuspid Atresia, Hypoplastic Right Ventricle, Complete Transposition of the Great Arteries, Hypoplastic Aortic Arch, VSD, ASD, Mild Mitral Valve Regurgitation, and Occlusion of the Coronary Sinus.

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Our happy son.

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